S2, E9. Neurofibromatosis Type 1: Benign does not mean fine

In this episode, listeners have the privilege of hearing from two guests, Shelley Herniman and Nicole Martin.

Shelley is mother to Noah, a teenager who was diagnosed with an inoperable brain tumour in June 2021. Nicole was diagnosed with NF1 as a toddler and is the inspiration behind the charity, Childhood Tumour Trust.

Shelley and Nicole spoke about the challenges of navigating the education system with a chronic illness, how harmful the description ‘benign’ can be to those living with a supposedly benign illness and how NF1 has impacted all of their family relationships.