S1, E5. PCDH19 Epilepsy: Motherhood and the journey towards finding hope and healing

Hannah’s son Alfie was the first person to receive an NHS prescription for medical cannabis. He lives with an incredibly rare form of epilepsy, PCDH19, which saw him turn from a seemingly healthy baby to living his life in and out of hospitals in just a few months; suffering life threatening clusters of seizures. PCDH19 Epilepsy is characterized by treatment-resistant epilepsy that begins in the first year of life with early onset seizures. 

As well as being a parent carer, Hannah became both a campaigner and an active advocate, and has gone on to win awards for her hard fought medical cannabis campaign. She continues to campaign for fair access to medical cannabis treatments on the NHS for everyone.

You can find out more about Hannah on her website.