S2, E7. Primary Ciliary Dyskinesia: Coordination of care, cultural considerations and finding community

Written By Projects Team

Abdullah is a 24 year old from Berkshire who was born with the rare condition Primary Ciliary Dyskinesia.

He talks about his experience of diagnosis and care both in the UK and Pakistan and his subsequent passion about the importance of coordinated care regardless of postcode.

He also opens up about what it’s been like for him navigating conversations around genetics, relationships and family planning whilst coming from a South Asian and Muslim background.

Abdullah is also the treasurer for PCD support UK supporting those affected by PCD.

Social links

Twitter: @A_ihsan99

Projects Team
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S2, E8. Primary Ciliary Dyskinesia: The power of partnerships in PCD and across the rare community
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S2, E6. Alport Syndrome and rare kidney diseases: Developing with the community and being involved as a clinician